Tag: herpes zoster

Shingles

No, I don’t have shingles again, but I noticed that it’s one of the biggest searches that brings people here. To skip to posts that mention shingles, click here.

I’ve had shingles three times. The very first time, I had no clue what it was. Each time thereafter I did.  There have been clear signs that I was going to have a case. In advance of the rash, I felt generally unwell. My most recent outbreak was on the left side of my head, and was preceded by an earache, headache and sore throat just on that side.  Each time, the skin in the area where the rash would soon appear was extremely sensitive and sometimes felt almost as a burning sensation, but very mild.

Once the rash appears, there can be itching and sharp stinging. Sometimes the stinging is enough to make me say ouch! Even after the rash clears up, there’s still some stinging and itching.  It eventually wears off, but I still have itching on my head where the rash used to be. Certain spots are still extremely sensitive at times.

I’ve been told that it’s necessary to start an anti-viral such as Famvir as soon as possible to lessen the likelihood of post herpetic neuralgia, but that it will not be effective if started too late. If the rash has been present for more than 3 days, it may not do any good to be on an anti-viral.  Some myeloma patients are on an anti-viral persistently in an effort to prevent the ocurrance of shingles.  I’ve not done that, because I don’t like the side effects of the drug Famvir, which gives me headaches.

Shingles is caused by the varicella zoster virus, which is the same thing that causes chicken pox.  If you have never had chicken pox, you won’t get shingles. You can get chicken pox from someone who has shingles though!

More about shingles

Another bout of shingles

According to the NIH web site,

Shingles (herpes zoster) is an outbreak of rash or blisters on the skin that is caused by the same virus that causes chickenpox — the varicella-zoster virus. The first sign of shingles is often burning or tingling pain, or sometimes numbness or itch, in one particular location on only one side of the body. After several days or a week, a rash of fluid-filled blisters, similar to chickenpox, appears in one area on one side of the body. Shingles pain can be mild or intense. Some people have mostly itching; some feel pain from the gentlest touch or breeze. The most common location for shingles is a band, called a dermatome, spanning one side of the trunk around the waistline. Anyone who has had chickenpox is at risk for shingles. Scientists think that in the original battle with the varicella-zoster virus, some of the virus particles leave the skin blisters and move into the nervous system. When the varicella-zoster virus reactivates, the virus moves back down the long nerve fibers that extend from the sensory cell bodies to the skin. The viruses multiply, the tell-tale rash erupts, and the person now has shingles.

I’m taking Famvir for my shingles, 3 times a day, for 7 days. This outbreak has manifested itself on my right arm and hand. You’d think I would have known what it was, since I had it a few years ago. I didn’t though, and was glad I showed the doctor. I have been struggling with rashes from Velcade & Doxil, so I was inclined to ignore it. The difference was that this rash hurt. The other rashes had pretty much cleared up after I started to get decadron and benedryl in my IV with each treatment, thanks to Eric’s suggestion.

Famvir is something that’s prescribed for genital herpes, so I’m embarrassed when I go to pick my rx. Dumb as this is, I loudly ask the pharmacist if I need to take my shingles medicine with food.

There’s more on my blog about my experiences with shingles. and here:
More about shingles on this blog