This is just a quick update. I’m still on Darzalex, but am also taking 2 mg of Pomalyst (pom) 21 days a month. I’m not taking dex at the moment. I just get 20 mg of dex with each dara infusion. We’ll see how that goes.
For the last 3 or 4 months, I’ve been getting dara via rapid infusion. That cuts down on a lot of chair time. It feels like I may be having some more pronounced side effects from the rapid infusion in the form of fatigue and a bit of just feeling yucky. I asked my doctor if he’s heard others say they feel a little worse after the rapid infusion, and he said that seems to be the case with some people.
Anyway, I am still alive and am stable at this point.
dara = daratumumab
pom = pomalidomide
Good to know you are hanging in there. Thanks for the update!