Started back on thal tonight

I started back on thalidomide tonight. It’s easier to call it thal. Surprisingly, Dr. Durie calls it thal too. Thalidomide is a mouthful. I took 40 mg of dex this morning and took 50 mg of thal tonight. I’ll take 50 mg of thal some other night this week too. Dr. D. didn’t think that it would cause a progression of my PN, so I’m going to try it again. If it does start anything, I’ll stop right away. I’m not sure what I’d try next, but I think I may see about using pred instead of dex, since dex isn’t doing its job anymore. Dr. Orlowski had told me once that he had patients who responded to pred after dex stopped working. I’ll cross that bridge when I come to it.

Mom’s home from the hospital now. All her tests were normal. She had an elevated WBC and a UTI, so she has Cipro for that. I asked to see all the lab reports, but we didn’t get them. :( In this hospital, they’ll just walk in and say, “I’m going to give you a shot!” If you don’t ask, they don’t tell what it’s for. Strange, huh? They don’t tell you what your BP is or any of that! I’m used to something quite different where I receive treatment (UNC Chapel Hill).

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