My life as a myeloma patient for almost two decades
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Today I started my 6th cycle of Revlimid and dexamethasone. I’m on standard dose dex now, which is 40 mg a day on days 1-4. I take the Revlimid for 21 days. The last 2 months, my blood tests have shown my MM to be stable and at a quite low level. In May, IgA = 488 mg/dL, with two M-spikes: 0.1 and 0.2. In April, it was just a few mg/dL higher (493) and the M-spikes were the same.
I want to make one thing clear for people who are searching for the Beth Morgan who is a porn star. I’m not that Beth Morgan. I’m the one who has myeloma. Frankly, I’d rather have myeloma than be a porn star. So, if you landed here because you were searching for that Beth Morgan, move along — or better yet, learn something about myeloma and make a contribution to the International Myeloma Foundation.
I hardly slept last night, but I made up for it today. I slept well from 7 am until 1 pm. Every bone and muscle aches, it seems, and I have a sore throat and sinus congestion. Believe it or not, I made through all of 2005 (except the beginning of January) without catching a cold.
I’m just going to take it easy until I feel better. I’m sad that I can’t swim today, but I think that wouldn’t be good for me. Maybe I’m wrong. If there are rules about colds and swimming, I don’t know them.
This is from ePocrates
Common Reactions
thrombocytopenia
neutropenia
diarrhea
pruritus
fatigue
rash
constipation
nausea
nasopharyngitis
arthralgia
pyrexia
back pain
peripheral edema
dizziness
headache
cough
muscle cramps
dyspnea
vomiting
asthenia
epistaxis
dry skin
abdominal pain
anemia
infection
hypokalemia
anorexia
insomnia
peripheral neuropathy
Serious Reactions
severe birth defects
thrombocytopenia
nuetropenia
thromboembolism
leukopenia
anemia
pancytopenia
rash, severe
pneumonia
sepsis
multiple organ failure
syncope
I had a migraine day today. It started last night and was still there when I woke up this morning. I took every kind of pain reliever I have and some ativan, too. I feel better than I did this morning, but not normal yet. I think I’m just going to go to bed & assume it will be gone tomorrow. I’m sure it will be. I’ve never had one of these last much more than 24 hours. I didn’t even swim today. :(
I got the results of my blood tests yesterday. My IgA and M-spike are the same as last month. There are two m-spikes: 0.1 and 0.2 g/dL. My IgA is 488 mg/dL. Last month it was 493. My WBC is lower than it’s ever been before, but still in the normal range, so nothing to worry about. I’m a little anemic, but nothing to worry about yet. This could be from the Revlimid. Most likely is. I have a week off starting today.