As part of “Koppel on Discovery,” an original Discovery Channel series, Living With Cancer premieres on Sunday, May 6th at 8PM ET/PT, simultaneously on Discovery Channel and Discovery Health. The two-hour documentary will be followed by a live town hall meeting led by Ted Koppel and a panel that includes Leroy Sievers, Elizabeth Edwards, Lance Armstrong.
MM (Multiple Myeloma)
MDS (Myelodysplastic Syndrome)
Patients & Caregivers
Clinical research study on a newly launched medical product. The purpose is to gain insight and gather opinions from patients and their caregivers that are diagnosed with MM or MDS. It is not necessary to be taking medications to participate. All information is completely confidential and used for research purposes only.
In person 45-50 minute interview
Locations & Dates -Philadelphia, PA – 5/10,5/11,5/12
Fort Lauderdale, FL ??? 5/14,5/15
Phoenix, AZ ??? 5/16, 5/17, 5/18
Participants receive $150 cash.
Please contact to schedule or ask questions.
Jan Mallery-Groom RN
Project Manager
212-217-0407 / 201-284-8201
I had blood drawn on April 26th and saw th report today. The last one was discouraging, but I was reminded not to panic until we saw a trend. This time, it’s down. The m-spike(s) are a tiny bit lower, too.
IgG: 350 mg/dL (range: 694-1618) Low — 375 on April 8
IgA: 876 mg/dL (range: 68-378) High — 1080 on April 8
IgM: 35 mg/dL (range: 60-263) Low — 23 on April 8
M-spikes: 0.35 g/dL and 0.10 g/dL (no m-spike is normal) — 0.44 and 0.13 last time
I wonder if there’s any way the April 8th test was elevated because of the virus that caused my shingles?
I had a visit to the podiatrist Friday to have a foot problem checked out. I also let him know about my grade 1 neuropathy. He suggested something called Metanx, and gave me two 5 day sample packs. It’s a Rx only supplement. It actually says, “Medical food” on the box. That means it won’t be covered by insurance, unfortunately. I’ll give it a try though, and let you know how it works. He said it’s not for the painful kind of neuropathy. For that, he prescribes Lyrica or Cymbalta, which he says are well-tolerated.
Here’s the Metanx web site if you’re interested.
Tom posted this on the list today.
A Reunion of Friends
Eighteen years ago, Pete Slosberg, of Pete’s Wicked Ale fame, brought Alan Shapiro and Virginia MacLean into his company. While these long-time friends later pursued different professional paths, the news that MacLean had been diagnosed with multiple myeloma, a form of bone cancer, brought them back together. They have reunited to create a beer inspired by Pete’s early recipes, and dedicated to raising awareness and support for the Institute for Myeloma & Bone Cancer Research in Los Angeles.
Reunion-A Beer for Hope is an organic imperial brown ale brewed by Slosberg and Dan Del Grande at Bison Brewing Company’s organic brewery in Berkeley, CA. It is brewed with six different organic malts, three different hops and dryhopped. It is 7.5% alcohol by volume. Reunion will be sold in 22 ounce screen-printed bottles via Shapiro’s SBS-Imports distributor network in California, Oregon, Washington, Arizona, Colorado, and Illinois. It has a suggested price of $4.99 per bottle.
All profits generated by SBS from the sale of REUNION will benefit IMBCR.
The web site is http://www.reunionbeer.com/
Visit the IMBCR web site to see a video of Debbie Reynolds talking about MM!
Who give his kids rides on the mower. I have personally known 2 kids who had very serious mower injuries. One was almost killed. One had a partial amputation of a foot. Imagine how easy this kind of injury is to prevent, just by following the rules below.
Change of Season Brings Lawn Mower Warning
SUNDAY, April 15 (HealthDay News) — Each year in the United States, about 9,400 children are treated for lawn-mower related injuries such as lacerations, fractures and amputations of the fingers, hands, toes, feet and legs, say experts at Johns Hopkins Children’s Center.
“The No. 1 advice to parents is: Treat the lawn mower as hazardous equipment, not a toy. You don’t let a child play with an electric saw, and that’s exactly what a lawn mower is,” Carol Gentry, pediatric OR nurse manager, said in a prepared statement.
Of the lawn mower accident cases treated at the Johns Hopkins Children’s Center between 2000 and 2005, 95 percent involved amputations that required reattachment or reconstructive surgery.
The Hopkins experts offer tips for preventing mower-related injuries:
- Children younger than age 6 should be kept indoors while a power mower is being used.
- No child younger than age 12 should use a walk-behind mower.
- Children under age 16 should not be on riding mowers, even if they’re with an adult.
- If you’re mowing and see a child running toward you, turn off the mower immediately. Children can fall and slip into the blade, especially if the grass is wet.
- Wear protective goggles and closed-toe shoes when operating a mower or when near one.
- Before mowing, clear the lawn of debris such as sticks and stones, which may get caught in the mower blades and be propelled out.
- If someone suffers a mower-related injury, call 911 immediately and apply pressure to the wound to stop bleeding while you wait for an ambulance.
- Buy mowers with a no-reverse safety feature that requires the operator to turn around and look behind before shifting the mower into reverse.
— Robert Preidt
SOURCE: Johns Hopkins Medicine, news release, April 9, 2007
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