StoryCorps/NPR Broadcast on Multiple Myeloma

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From a reader:

I’m writing from StoryCorps, America’s largest nonprofit national
oral history project. Because our broadcast this morning on NPR talks
about the experience of a family affected by multiple myeloma, I
thought it might be worth sharing with your readers. Please have a
listen!
Sy Saliba talks to his daughter, Yvette, about her mother, Pat, who
passed away from multiple myeloma, a type of blood cancer, in 2005.
http://bit.ly/93jYOB

StoryCorps is an independent nonprofit project whose mission is to
honor and celebrate one another’s lives through listening. Since 2003,
tens of thousands of people from across the country have interviewed
family and friends through StoryCorps. Each conversation is recorded
on a free CD to take home and share and is also archived for
generations to come at the Library of Congress.

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A Southern Pines Sunset

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It’s been raining off and on for a few days, which is good. We needed it. I think we might continue to have showers over the next few days, but I usually don’t pay much attention to weather forecasts.  I just wait and see what happens.  I’ve known people whose every movement hinged on the weather forecast and that never made any sense to me.  It wasn’t like they were farmers or anything.

Anyway, it was a great night for a walk, so Buddy and I went out. I took this picture with my trusty iPhone.

Sunset in Southern Pines North Carolina

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The week in pictures

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These are some of the pictures I’ve taken over the last week on my iPhone.  Most of them are stuff from the garden.  We planted broccoli, squash, tomatoes, peppers, some herbs and green beans.

The snake pictured is a scarlet king snake.  I found it in my pool, but not in time to save it.  It’s not as big as it looks in the picture.  I estimate it to have been about 8″ long.

The hearse was parked in the bank parking lot.

There are three families of geese in the neighborhood where my aunt lives.  Last time I was by there, I got out of the car to take a picture.  I didn’t get close though!  Geese can be scary!

Broccoli in my garden

Here come the tomatoes

Squash blossoms

A scarlet kingsnake

An old hearse I saw today

Geese over by my aunt's house

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Myeloma Blogs web site gets a facelift

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MyelomaBlogs.org, a blog feed aggregator for patient and caregiver myeloma blogs, has been revamped.  It’s all new, thanks to our good friend, Lopo Lencastre de Almeida of iPublicis.

The site has a new look and will allow you to read a short excerpt of posts, search posts and browse by tags.  You can also help spread the word by sharing blogs posts on many social networking sites.

You’ll see what I mean.  Head on over to http://www.myelomablogs.org/.

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W5 investigates the high cost of Celgene’s Thalidomide

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W5 investigates the high cost of Celgene's Thalidomide
http://watch.ctv.ca/news/w5/pills-patients–profits/#clip281624

Canada’s news program, W5 (which I assume is shorthand for who, what, when, where and why) , did a program called, “Pills Patients & Profits.”  You can see the entire segment on their web site.  Click on the link or image above to watch part 3, which focuses on the cost of thalidomide (Celgene’s Thalomid), which is an important treatment for multiple myeloma.

It’s very informative, so please do watch all four parts.

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New customer

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Equine Fencing Southern Pines, NCI’ve been working with a new customer, Brad Charles, to construct a web site.  I have to say that I don’t think I’ve met such a nice person in a long, long time.  I want to give hm a little plug here!  If you’re in the Southern Pines area and need equine (horse) fencing, please give him a call!

Equine Fencing, Southern Pines, NC

910-692-8276
910-690-7000

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More facebook time

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Most of us need to find reasons to spend more time on facebook, so Margaret and I have come up with a facebook group for myeloma patients, caregivers, friends, family and others.

http://www.facebook.com/group.php?gid=108654495840465

From Margaret’s blog:

  • And finally, as if we weren’t busy enough!, day before yesterday a friend and I decided to create a Multiple Myeloma Support Group on Facebook. It’s a private support group (that is, FB users who are not group members cannot read anything we write)…so, if you belong to FB, please join us! The group was created less than 48 hours ago, and we already have 74 members… By the way, this group is intended mainly for myeloma, SMM and MGUS folks and caregivers, but other cancer patients are welcome, too. Click on: http://www.facebook.com/group.php?v=app_2373072738&gid=108654495840465#!/group.php?gid=108654495840465 (I hope the link works…please let me know if it doesn’t). Then click on “Request to join.” If your membership request doesn’t get approved immediately, that simply means that Beth and I aren’t online, so please be patient. Anyway, until there is a cure, we need to provide support for one another…and also exchange useful information about both conventional and alternative treatments, with a bit of humor sprinkled around, whenever possible…!
  • While you are at it, you can also become a fan of my blog on FB: http://www.facebook.com/photo.php?pid=3900082&id=600258519#!/pages/Margarets-Corner-Living-with-smoldering-myeloma/312414599519?ref=ts

Please join us there. Stop in and say hello!

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