It’s been nearly 8 years now since I checked into the Bone Marrow and Stem Cell Transplant Clinic at Duke for my autologous SCT.
I hate that my transplant buddy, Joyce, couldn’t make it this far with me. When she told me her time was running out, I didn’t realize how fast it would go. I thought there’d be more time. Three months, even. I think it was about 3 weeks instead.
As for me, I am still living an uneventful life. My MM test result are slowly climbing. I have no symptoms. My doctor said we’d wait for a “triggering” event before considering treatment. He means that we’d wait until I have some symptoms, such as anemia, before undertaking any treatment.
In July, I broke my left shoulder, but it had nothing to do with myeloma. I wound up with something called a Bankart fracture (“bony Bankart”) and Hill-Sachs deformity. A piece of the bone called the glenoid broke off. The orthopedist explained that there’d probably be no benefit to attempting surgery to repair it. I will just be at risk for future dislocations, but he didn’t think that would be very likely. I was happy to avoid surgery.
Here are some some pictures that show the injury.
My dad has just been diagnosed witH MM are their any support groups you could direct us too? Thanks a bunch xx
Hi – I’m sorry to hear about your dad. :( most of the support groups are on Facebook now. There’s also myelomabeacon.com. if you don’t find something, please let me know.