I had Velcade this morning, ending cycle one. I have next week off, and then will start cycle two. I guess the week off is included in the cycle, since they’re 3-week cycles. A couple hours after, I get a bad headache. I actually have to take percocet for the headache.
Kathy Griffin is making the rounds on TV this week. She was on Ugly Betty last night and the View this morning. Normally I don’t watch daytime TV, but I have TiVo record anything with Kathy in it automatically. She’s just too funny to pass up. If there are people or things that make you laugh, take full advantage of them. Laughing is good for us!
Hi, Beth! I saw you mentioned on the myeloma e-mail list that you’re interested in looking into the genetic testing at Mayo. I had this done at Mayo (Rochester) when I was having all of my initial tests at my first visit. It was all done as part of the bone marrow biopsy. According to the tests, I fall into the low-risk category. If you have any questions about it, let me know!
Finally I’ve found the blog of someone who is going through the same disease at about the same stage by husband is. Thank you for sharing your story. Although I understand the medical side of thing (as an RN) Maybe it will give me more insight into how he is feeling. We are doing Velcade, Thalidomide, Dex, and are now being referred for SCT because he is no longer responding. IGA level started at 7800, went down to 3,000 over the course of 6 months and is now back to 4900. My best to you, I will visit often. Can’t wait to get home from work to tell my husband about you. cboler
Hi Beth
Thought I’d wish you well with your treatment.
My BSC transplant is moving along. Day 14 now. Had 4 days in hospital day 9 -13 as I had a bit of a temp – sleep, dozed throgh most of it. Luckily my appetite & mouth is so so and no nausea cept for an occasional dry retch. But smells get to me. Hopefully leave motel tomorrow and back home to the hills.
Thought I’d wish you well
henk
Hi Beth, I started cycle III of Velcade today. Ears are ringing–leading up to the headache. It usually hits 8 hrs post injection. About another 1-2 hours from now. Then the top of my head leaves my body for awhile. Wish I could just sleep through it!
Jude in sunny Valley Village, CA
I wonder if beer would help somehow. Suppose not, sigh …
Sure hope this is WORKING for you!