Dex is nothing short of agonizing sometimes. High blood sugar, sleeplessness and then the crash.
In a week and a half, I’ll have a blood test called IFE to see if it’s helping me. Dr. Orlowski thought maybe I could try DVd if this doesn’t help. DVd consists of Doxil, Vincristine and dex. It’s different from VAD, because, “DOXIL is made of fat bubbles called liposomes that contain doxorubicin. In DOXIL, these liposomes are surrounded by a layer of hairlike strands made from polyethylene glycol.” It has only a few hour (maybe a little more) infusion rate, as opposed to 4 days.
Hi Arnetta,
How are you doing on just thalidomide? I know how you feel. Ever since I started to take these drugs, I’ve been bloated, numb, tingly, sleepless. My hair thinned out quite a bit too. Lots of stuff happened. It did work on my MM though. I’m hoping the more frequent dex (alone) will lower my IgA.
Do you have PN from the thalidomide?
iWAS ON DEX FOR 8 MONTHS AND I HAD A HARD TIME WITH IT SINCE I WAS DIABETIC ALSO SO NOW I’M JUST ON THALIDAMIDE, I HAVE A LOT OF SWELLIN IN MY LEGS AND FEET ALONG WITH WEAKNESS IN MY LEGS. I WAS FOUND TO BE STAGE 3 IN NOVEMBER OF 2003.