Category: Life

Life

The IMF and cast of Everybody Loves Raymond honor Peter Boyle

This is from Access Hollywood. Way to go, IMF!

Hollywood Radar: November 12, 2007
All Access
The cast of “Everybody Loves Raymond” honored the late Peter Boyle at the International Myeloma Foundation Event to benefit the Peter Boyle Memorial Fund. And, Jerry Seinfeld’s “Bee Movie,” which open in second place last week, moved up to number on with $26 million.

To see a short video, click here.

To make a contribution to the International Myeloma Foundation, click here.

Great weather

It was about 70 degrees here today, which was fabulous. We walked to a nearby restaurant for lunch and didn’t need our coats.

I tried out a new chair at work. I need something on which I can put up my feet. When they’re not up, I have an increase in that neuropathic pain. I’m going to pile some pillows up on the foot rest tomorrow to see if that helps. Otto suggested some T.E.D. socks, so I’m going to look for them next time I’m out someplace.

Long car ride

On Sunday I drove a friend to Rocky Mount, NC to visit some friends. It was 2 hours each way, with a few hours in between. By the time I got home, my feet felt as though they were in flames and someone was beating on the soles with a hammer.  From the knees down felt numb.  This happens to me when I have to sit for too long.  This is a result of treatment with thalidomide and Velcade.  Luckily, the pain and discomfort goes away by the next morning and I’m left with the numbness in just my feet.

What is it that makes the PN so much worse while sitting?

New hat

This is a new hat brought to me from New Mexico by Sharon. Isn’t it beautiful?

Here in NC, we’re under voluntary water restrictions due to extreme drought conditions. Some of the people in my neighborhood are ignoring it though. I’ve noticed a few people washing cars at dusk, so as not to attract attention to themselves. I think we should have mandatory restrictions statewide. Some cities are fining people for car washing and watering lawns.

My hate from New Mexico

Test results

I got the results of the tests done last week at Duke. The report states, “Compared to 8/3/07, no significant change in previously characterized IgA lambda components from 0.28 to 0.19 and 0.12 to 0.18 g/dL.” The PA let me know that it’s possible for the m-spike(s) to drop more in the next few months. One good thing is that my IgG is normal for the first time in five years (probably a few more). It was 223 in February, 2003, for example.

Immunoglobulin Profile
IgG 709 mg/dL Reference: 588-1573
IgA 374 mg/dL Reference: 46-287
IgM 29 mg/dL Reference: 57-237
IgE 12 mg/dL Reference: 4-269

Uncle Fester

I think I look like Uncle Fester. All I need is an ankle length black coat with a (faux) fur collar. If you run across anything like this, let me know. I need one for my wardrobe.

You probably think I’m just joking!

It seems like little bits of hair are starting to grow. I predict that I’ll have what could be thought of as a normal amount of hair by spring. I can’t remember what happened last year. It seemed as though I had a short curly head of hair by spring.

This is what my head looks like now.

Sir?

Why would anyone call me sir?  I was pumping gas today, wearing my IMF cap to cover my bald head.  I had on flowered pants and a neon orange t-shirt with a cartoon dog on it, for crying out loud. Plus, I’m only 5′ 5″ tall, not to mention other obvious attributes. There’s no way anyone could mistake me for a sir!  It happened last year when I lost my hair too. I think hair must be more important to how people perceive another person than I realized.

Remember Julia Sweeney’s Pat character? I don’t even own any clothes like that. :)