Beth Morgan Multiple Myeloma Treatment Blog
My life as a myeloma patient for almost two decades
Joyce told me about this puppy cam, and I just have to share! They’re so darned cute. I don’t know how I’ll get any work done!
Note: The puppy cam was discontinued at some point. :( I just want to keep this post here, because my friend Joyce told me about it. Joyce and I were the “Myeloma Twins” until MM took her life.
Rachel’s project, WriterHouse, has been featured on Charlottesville’s NBC affiliate station, channel 29. Click here to read the story.
None of the WriterHouse members wrote this article! They would have used a spell checker. Actually, they wouldn’t need to use a spell checker. Some of them are competitors in the area’s annual spelling contest to raise money for literacy.
You can visit their web site at http://writerhouse.org.
The mission of WriterHouse is to promote the creation and appreciation of literature and to encourage the development of writers of all levels by providing affordable, secure workspace and meeting space, high quality writing instruction, and literary events for the public.
WriterHouse, Inc. is a non-profit organization, exempt from Federal income tax under section 501(c)3 of the Internal Revenue Code, and registered as a charitable organization with the Virginia State Office of Consumer Affairs. A financial statement is available from the State Office of Consumer Affairs in the the Department of Agriculture and Consumer Services upon request.
http://lowsaltgirl.healthblogs.org/ – What are your ideas about cutting down on salt? I was personally never worried about it, because I never used to add salt to anything. Processed foods are packed with sodium though, and there’s the problem.
Cindy has been keeping us up to date with her condition at http://cakassel55.healthblogs.org/. I think it’s good to read about other peoples’ experiences because they help us to recognize things when they happen to us.
Margaret is trying to stay on top of a mountain of research, and posts it to her blog: http://margaret.healthblogs.org/. I’m about to give some of her experiments a try. I’m still stable a year after the SCT, and want to keep it that way as long as possible.
I’ll post about some more blogs at a later time.
I stayed home from work today because I felt ill from the early morning on. I’m having some tea now, and am starting to feel better. I should be back to normal tomorrow.
We did lose power in the early morning. I think it was about 3:00 AM. I was just ready to go to sleep, so I didn’t mind much. It wasn’t too hot, so I didn’t need a fan or air conditioning. The thing is, I have an adjustable bed that’s powered by electricity and I had the head and feet elevated some. I had to sleep that way, since there was no way to flatten it out again. I woke up at about 7:00 and there was still no power, so I went back to sleep until about 9:00. Since there was STILL no power, I decided I’d call Progress Energy. I’m sure thousands of other people had called as well, but who could be sure? We all know about bystander apathy, and I think that extends to reporting power outages as well. The recorded message told me that there was no way to say for sure when the power would be restored, but that they were working on it. They let me know that I was not alone in my suffering. Approximately 55,000 other Progress Energy customers were also without power. I went back to sleep and stayed in bed until 1:00 in the afternoon. The power was back on by 10 or 11, I think, at which time I used it to flatten the bed out so I could have a few hours of proper sleep.
I have an idea for Google! How about Google Home Search? When I’m looking for something in the house, it would be great if I could type in my query and Google would find it for me. If the item can’t be found, Google could suggest an alternative.
Question: Where’s the TV remote?
Google: The item you searched for could not be found. Perhaps you should go for a bike ride instead.
The Institute for Myeloma and Bone Cancer Research has published some good videos which will answer some of your questions. These were informative for me, even after having lived with myeloma for the past 5 years.
http://www.imbcr.org/myeloma_QA.html
MMSupport.net unveils “Ask the Expert”, featuring Multiple Myeloma physician and scientist, James R. Berenson, M.D.
Ask the Expert is a free online web-forum where Myeloma and Bone Cancer specialist, Dr. James R. Berenson offers medical answers to questions surrounding quality of life and longevity issues for patients living with this rare form of cancer.
Los Angeles, CA – MMSupport.net and the Institute for Myeloma and Bone Cancer Research are proud to announce the creation of “Ask the Expert”, a free online web-forum featuring Multiple Myeloma expert, Dr. James R. Berenson.
MMSupport.net is the creation of myeloma-advocate, Beth Morgan. The website serves to foster community in the form of an online forum where patients and caregivers could learn more about Multiple Myeloma, a plasma cell cancer that resides in the bone marrow. Thousands of people visit MMSupport.net every day. Many visitors are Myeloma and Bone Cancer patients, caregivers and other medical professionals who actively participate in online discussions about treatment options and personal experiences. “Ask the Expert” is the latest addition to the MMSupport.net website and is available at no charge by registering on the site. Visit www.mmsupport.net for more information.
James R. Berenson, MD has 25 years experience in treating Multiple Myeloma and Bone Cancer patients. Dr. Berenson is CEO and Medical Director for The Institute for Myeloma and Bone Cancer Research and CEO and President of Oncotherapeutics, an oncology-specific clinical trials management service. Dr. Berenson is an active clinician who treats patients daily in his Los Angeles offices and acts as a specialist consult to patient’s primary oncologist or primary care physician throughout the world. For more information, visit www.berensononcology.com
The Institute for Myeloma and Bone Cancer Research, based in Los Angeles, California, is an independent cancer research institute with a primary focus on hematologic cancers. Established in 2004, the IMBCR is a 501 c (3) non-profit organization. Over the last four years, the IMBCR has created novel breakthrough therapies that have substantially increased the longevity and quality of life of myeloma patients. The latest initiative at the institute is “The Cure Myeloma Project”, a multi-year research project that targets myeloma cells while keeping the non-cancerous cells intact. For more information or to make a donation, visit www.imbcr.org
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Media contact:
Beth Morgan, MMsupport.net beth.morgan@connectnc.com or,
Cheryl A. Cross, MPH, Institute for Myeloma and Bone Cancer Research ccross@imbcr.org 866-900-1035