Yesterday when I woke up I had what looked like a couple dozen mosquito bites on my torso. They don’t hurt or itch. They’re just there. The same today, too. I think there might be a few more. I didn’t count them yesterday, so I don’t know for sure. I guessed that they might be from chemo. I finished a round of Velcade + Doxil Friday. Since they don’t hurt or itch, are visible to the public or bother me in any way, I’ll see if they’re still there tomorrow. If they are, I’ll call the doctor. I don’t think they’re anything to be alarmed about.
Beth, I recently found your blog and wanted to thank you for all of the great information. My 48 yr. old husband was diagnosed with stage 1 MM, Ig G over the Christmas break (hey, at least our 3 kids-age 10, 7yr old twins enjoyed the holiday!) and he
is on a course of Thal/Dex preceeding a possible stem cell transplant. We meet with the transplant surgeon, Dr. J. Moreb at Shands
Hospital, U. of Florida later today. Having a full-time job and 3 little ones to take care of, I haven’t had much time to do the research I would have liked to do. Your’s and Teresa’s blog have been an invaluable source of been-there-done-that information. I really appreciate your blog and wish you the best.
Beth thankyou for your site. I just found it!!! ha. reading some of your information has brought back many memories of my treatments. I was dx in june of 2004. I am now approaching the 3 year survival mark. I had my first transplant in Dec. 04 and second in Feb. 05. Still trying to get to remission. I am really thanksful to the Lord for The Myeloma Instititue in Little Rock. I too am on a clinical trial which involves thalomide and dex. so far no numbness
As far as what you are experienceing, i never had, but do let you physicians know about it immediatley. early treatment for us is important. don’t wait!!!!!
I called my doctor’s office and spoke to a nurse, who asked a doc about my situation. She said I should call them about it if they become any more numerous or become blister-like and the skin sloughs off. Eric also had this problem, and his was prevented by using IV benedryl and decadron during treatment. I emailed one of the research nurses at UNC to see if he had experience with this in the trials.
Beth,
This sounds like the “adverse event” that took me off the trial after my third cycle. They were only on my back. I might still have a photo around I could email. I had sent photos to my oncologist. He was worried about something called Stevens-Johnson syndrome.
Jude